Thursday, April 15, 2010

Thursday, April 15, 2010 4:35 PM, EDT

Awesome Ally did great again today. The pain didn't begin until the very end of the infusion. This is good, because it only lasted about 30 minutes, but the anticipation is horrible. Usually she starts in about 10-15 minutes into the infusion, but today I was on edge waiting for it to start. She needed all of her rescues, plus some extra meds because her lips were swollen and the hives were not going away. I even had to give her more hive medication when we got back to the Ronald. She did some good sleeping at the hospital, but was not interested in napping, resting or any of that when we got back. Around 1:30 she was ready to head to the playroom and have something to eat. She was a little irritable, but now she is happily watching TV. She is not really interested in being outside right now, hopefully she will this weekend. It is nice out here.

One more day, then a fun weekend in NYC!

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