Monday, August 31, 2009

Ally's counts are good!

Monday, August 31, 2009 4:55 PM, EDT

Today we went to the medical center for day one of chemo. Ally's doctor called 3 phones before she actually got a hold of one of us yesterday (dedication!) to tell us Ally's counts were super good.

Today ran a little slow, as it always does, but Ally was in a good mood, we got to play in the playroom and Ally took a good nap. Ally will continue with chemo this week and next week she will do 4 days. Everyone gets Labor Day off!

Ally has been doing well with her potty training. She has peeded one time in the potty every day so far. I'll let you all know when she is fully there, until then, this is the last potty update...

Back to school tomorrow...wish me luck in not getting H1N1!


Saturday, August 29, 2009

Ally update!
Saturday, August 22, 2009 7:18 PM, EDT

Next weekend Daddy and some of our friends are running a half marathon to raise funds for CHaD. The Moore family has spent many a night at CHaD, and are very thankful for all they do for us and the other families on the floor. A couple of our friends are looking to raise money. Check out their link here:

Also coming up this week is the WEEI Jimmy Fund Telethon. Without the work the Jimmy Fund does, our situation would be very different right now. Here is a link to their page:

Friday, August 28, 2009 8:47 PM, EDT

Ally peed in the potty!

The full story tomorrow.

Saturday, August 29, 2009 1:35 PM, EDT

The full story:

In the late spring Ally was showing signs of being potty trained. At that point we were not really sure what her medical future held. (If there was going to be a lot of hospital time, it wouldn't be worth it to us to train her.) So, we waited for that time in July were she had scans and we decided to continue with chemo.
We went out and bought a potty and some other training things. Ally then decided "no thank you". So, her potty has been sitting in the bathroom, unused for a couple of months.
We have been trying to encourage her along the way. We told her that the moment she actually used the potty we would go for ice cream.
Last night she was pretending to go potty on a little wooden toy box she has. I suggested that maybe we could switch it out for her real potty. She was agreeable. Then, she sat down and peed. It was crazy! Of course she remembered the ice cream deal. So, even though it was 7:30 last night (when we normally bring her upstairs for her nu-nights routine), we headed to the store for ice cream!!!

Now, if only she will do it again....


Thursday, August 27, 2009


Wednesday, August 26, 2009

Monday, August 24, 2009

Awise ye Wacoons of teh World!!

The Council of Elders


Mama's brought the boyz


Party's Over. . . .


Sunday, August 23, 2009

Summer tableau, life lesson.


high enough to see prey

young enough to hope mom shows up

well fed enough to be bigger than parents

leaving a hole in the stomach

from that missed meal

and waiting

But mouse beware

those hawkeyes are getting sharper

along with the talons,

only those couple of yellow down feathers

on the crown of the head

to give any hope

as you rustle at your peril.

~~ Phil Specht

Saturday, August 22, 2009

The Red Panda, also called the Firefox or Lesser Panda (Latin name: Ailurus fulgens, "shining cat"), is a mostly herbivorous mammal, specialized as a bamboo feeder. It is slightly larger than a domestic cat.

The Red Panda is endemic to the Himalayas, ranging from Nepal in the west to China in the east. It is also found in northern India, Bhutan and northern Myanmar.[2] There is an estimated population of fewer than 2,500 mature individuals. Their population continues to decline due to habitat fragmentation.[3]

. . .


Recent molecular-systematic DNA research places the Red Panda into its own independent family Ailuridae. Ailuridae are in turn part of a trichotomy within the broad superfamily Musteloidea (Flynn et al., 2001) that also includes the Mephitidae (skunks) and the Procyonidae (raccoons) + Mustelidae (weasels). Unlike the Giant Panda, it is not a bear (Ursidae).[5]


G I A N T - P A N D A . C O M

The giant panda (Ailuropoda melanoleuca) first appeared in the evolutionary record during the late Pliocene or early Pleistocene, some two to three million years ago. Panda fossils have been found in Burma, Vietnam, and particularly in eastern China, as far north as Beijing. Pandas were once widespread in southern and eastern China and in neighbouring Myanmar and north Vietnam. Today, however, there are only around 1,000 left. All of these are found in one geographic region - the bamboo forests of southwestern China.

Giant pandas are classed as bears by most scientists. Unlike other bears, they vocalize by bleating rather than roaring. Until recently, giant pandas were grouped with raccoons and lesser pandas (i.e., the Procyonidae (raccoon) family). This decision was based primarily on physiological evidence. In the late 1980's, DNA/serological studies clearly established that giant pandas are clearly more bear than raccoon. Some scientists want to place giant pandas in their own grouping; but for most bear researchers, this does not seem warranted.


Friday, August 21, 2009

Thursday, August 20, 2009

Thinking about wars. . . . And my childhood, which was without father because of war. . . .


Refugee River

Saturday matinees
for years those reels
were more real than my childhood

We had to watch that war
that is where my father
was, somewhere in that
grainy black and white

Was she hoping, praying
to catch a picture of him?
Him who was in a silver
frame next to my bed
so I would not forget
him. Next to hers.

But never did. Instead,
rivers of refugees, fleeing
now from this city, now
from that. Sometimes
because of us. Sometimes
because of "them."

Them made smoke and fire
them made the faces of the women
afraid, and the children, my
size, tormented. I didn't know that
word then. But I knew the
look on the face of the child
carried in a grandfather's arms.

And we hoped my daddy could fix it.



New Moon, Thursday, August 20, 2009 at 6:01 AM

Moon Sliver

Monday, August 17, 2009


Saturday, August 15, 2009


Thursday, August 13, 2009

Great Idears. . . .

Lend4Health is a non-profit that facilitates community-funded, interest-free micro-loans as a creative funding option for individuals and groups seeking optimal health. Currently, Lend4Health is facilitating loans for the "biomedical" treatment of children and adults with autism spectrum and related disorders. Other health issues may be included on Lend4Health in the future.

Wednesday, August 12, 2009

Monday, August 10, 2009

for Sarge. . . .

the lost girl

Sunday, August 09, 2009

Friday, August 7, 2009 9:54 PM, EDT

Ally got to spend a lot of time with Grammy and Grampa Moore this week. Mommy had a 2 day conference in Maine (that involved Lobster, wine and a lot of math) and 4 hours of work today! Wow, that's a lot of work for the first week of August. I will have to get a massage next week just to recover! Ally had loads of fun with Grammy and Grampa, so much so, she didn't think she needed a nap on Tuesday and Wednesday. On Thursday Ally napped from 12:20-1:37 and 1:43-2:34ish. She made up for those missed naps! (Her average is about 45 minutes a day.)

Ally also got to see Grammie and Grampa Schulte tonight for dinner, one of Mommy's teacher friends and Auntie Kelly this week. She is a popular munchkin.

Tomorrow night Mommy and Daddy have something fun to do and Grammy and Grampa Moore have the fun task of hooking Ally up to her feeding tube and putting her to bed! This will actually be the very first time one of us has not been home (or wherever Ally is) to put her to bed. She'll (we'll all) do great?!?

Ally has successfully taken all of her GCSF shots ("little cry Mommy?"...the silly kid asks permission to cry with each injection. She actually does a very little cry. As soon as the needle is pulled out she stops. What an awesome kiddo!) She will have blood drawn on Sunday to make sure her counts are high enough to start chemo on Monday. If they are Mommy, Auntie Lynn and Ally are headed to DHMC for a 9AM appointment! Finally a reasonable time. (Day 1 of chemo usually takes 5 hours...that means those 1PM appointments keep us there until 6PM, and then an hour drive home.)

Okay, well, wish the Moore family luck for tomorrow night. Hopefully I will not have to post a story about Ally staying up until Mommy and Daddy got home. Also, cross your fingers that counts are good.

Have a great weekend.

Note: Ally's Mom says that the evening when they were going to be out past Ally's bedtime for the first time, while Grammy and Grandpa stayed with Ally, it came time for them to leave and they braced themselves for a scene. They said they were going out, and Ally said, "Thanks for stopping by!" and went back to playing with her toys! Ha! She is a riot! :-D

Sunday, August 9, 2009 3:19 PM, EDT

We just got a phone call. Ally's counts are super fantastic and she is a go for a full round of chemo.

For those of you keeping up: Ally did great with Grammy and Grampa (of course). They took her to a park, a wantwant (restaurant) and gave her a pop all before the time we needed to call because we forgot a key detail to her bedtime routine. Her only little glitch was staying up a bit later than usual. We put her in her crib just before 8PM and sit with her until she is asleep. This usually happens by 8:20. With Grammy it was 9:15. She was super adorable while being naughty though!

Well thanks for checking in! We are looking forward to an uneventful week of chemo.

Saturday, August 08, 2009


Thursday, August 06, 2009

Tuesday, August 04, 2009


Sunday, August 02, 2009

Ally's Party!

by FloridaFan

Saturday, August 01, 2009

Saturday, August 1, 2009 4:19 PM, EDT

Oh what a fun day!
Today was a Schulte Family Reunion (with a sign that said "Ally's Party"). There were so many new people for Ally to meet, Daddy and I were very nervous Ally would shut down and cling to our hips. Of course, Ally rocked it out! She was playful with a couple of her cousins, ran around tons and tons, loved the super high swinging swing, ate food, gave hugs to Auntie, Uncle, Grammie and Grampa, and gave high 5's to pretty much everyone else (a HUGE step for her!). It was so nice to see all the Schulte relatives, and Mommy and Daddy are super appreciative of everyone giving Ally her space and allowing her to do what she wanted, which was run up and down the little hill to Grampa. Such a fun day, and as a bonus, Ally slept the WHOLE way home. Thanks Schulte family for being so awesome.

The stream of consciousness bears us forward

Today, pondering whether
to put panties on to go to
the store, I remembered
(as we all do) our mothers' warnings
about accidents, and, too,
Angie's mourning the cut-up
pieces of her favorite pjs
returned to her when she
checked out of the hospital
after her heart attack
Running her hands over the
pieces of pink silk,
weeping. Not often did
that life have pink silk in it

Earlier, an old friend had
sent news of an old friend's
suicide. The summer after
Edwin died. I suppose I thought
after his death that no one else
could ever die. . . .

One can blow one's brains out
in an apartment in Greenwich Village
if one wishes. But must use a
shotgun, because of gun laws.

About Ron: I knew him
when he was the "Mad Scarf"
of Taliaferro Hall ~~ our resident
poet-ghost walker. His nose always
running into that magnificent mustache.
The red scarf a banner, a talisman.
I knew him before he was Liam, before
any of the three wives, before the daughter
before NYC. Before he learned to play the system,
before cancer, before heart problems (he never had problems loving).
All he was when I knew him was one of the very best poets.
It was not enough.

As I near 70, all the deaths
might weigh me down, were they
what I remember most. But what I
remember is the love ~~ that
they lived, were joy, and found a
home in my heart.

1 August 2009

Happy Birthday Big Boy ~~ Wish you were here. . .