Wednesday, November 05, 2014

Today Ally had her MIBG scan. It came back NED (No Evidence of Disease)!


The days leading up to the scan have been stressful.  The last time she was scanned was 6 months ago.  This was the longest we have gone between scans.  Our scanxiety will have to wait even longer now, because her oncologist thinks this should be her last scan.  This is great news, in that she feels Ally has progressed enough to not have to scan her.  This is also nerve wracking, as there will always be that element of not knowing for sure.  Her oncologist did assure us that if we felt, for any reason, that something wasn't quite right, we would go ahead and scan.  We will head back to DHMC in 6 months, just for a check in.

Our next appointment brings us to MSKCC in December.  This is with the long term follow up care team.  We are looking forward to them being pleased with her progress (she has gained over 5 pounds in the past 6 months...she is actually in the 5th percentile now!!!) and spending the weekend in NYC.

Thanks for following us and sending your positive vibes, thoughts and prayers our way.  I'll be sure to update about New York.

Happy Thanksgiving...there is so much to be thankful for!