Thursday, November 24, 2011

Wednesday, November 23, 2011 8:37 PM, EST

So much to tell.....

1. Ally can read!!! She has been sounding out 3 letter words for the past couple of weeks! It is so much fun, and she is so proud of herself.
2. Ally has a loose tooth! We are very excited for the tooth fairy. We have found out that Ally's tooth fairy brings trinkets, not money....who knew? We are wondering what would happen if her tooth fell out on Christmas Eve? Would Santa and the Tooth Fairy work together? I guess we will just have to wait and see.
3. Ally is HAMA positive (grrrrr), BUT she is only slightly HAMA positive. We are going to draw again next Thursday and see if she is still positive. She is really close to being negative, so they hope she will drop quickly. We hope so too.
4. Ally is due for scans again in January. Our DHMC doctors are working on having Ally do the CT and the MIBG awake. Ally did the CT awake last time, no problem. The CT only takes 5 minutes or so. The MIBG is 45 minutes of Ally laying very, very still. One of us will be able to be in the room with her for both scans. Hopefully this will all go well.
5. Sadly we had to leave Ally's medical supply company this week. Since Ally has been diagnosed we have been using a company called New England Life Care for all of her at home medical supplies (for her port and her feeding tube, and lots of various things over the past few years). My school switched insurance companies, and NELC can no longer service us. It seems silly to be upset about a switch in company, but this company has been fantastic. Because of them we have been able to leave the hospital a day early on more than one occasion. They are local (right here in Concord) and they have been able to get us supplies the day they are ordered. When Ally had to have her low dose chemo after the tumor came back, this was the company that came to our house everyday for 2 weeks on, 1 week off, for 11 or 12 cycles. They have been great and we will miss the local company.

Happy Thanksgiving. This year we are thankful for Ally....she is pretty awesome.

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