Tuesday, June 01, 2010

Tuesday, June 1, 2010 6:16 PM, EDT

We had a super fun weekend. We saw lots of friends and family. Ally had a wonderful time visiting with children her own age, and seeing some new people.

On Thursday Ally gets blood drawn (at home). This is to test her HAMA level. We will not know the results until next Wednesday. We are hoping for a negative HAMA. If this is the case we (Ally and Daddy) will head to NYC in a couple of weeks for another round of 3f8 and scans. If she is positive then we begin a treatment to bring her HAMA level down. (We have NO IDEA what this treatment is. We don't know if it is a medication we can get at our local pharmacy, or if she needs to go to a hospital for treatment, and if she does, can it be DHMC rather than MSKCC?) So many questions in the air right now....nothing like planning things last minute.

Thankfully Ally is off the medicine that messed with her moods. This weekend it was nice because even though she was still on it, we were able to enjoy "not crazy, mood swing Ally". The mood swings hit around 5:00 each night...just as we were leaving friends' houses. (You’re welcome, by the way!) Last night and tonight seem to be a little less crazy, so hopefully by the end of the week we will have Ally back at 100%.

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