Wednesday, March 03, 2010

Wednesday, March 3, 2010 3:17 PM, EST

I talked to the doctor in NYC today. Our original best case scenario plan was to start injections with Ally today and go to NYC for 3f8 treatment next week. For a couple reasons this is not going to happen. The main reason is the FDA. Weird. What is going on is Ally is on a Protocol. This means she is in a group with a bunch of other kids for this treatment. All the kids currently getting the treatment are on a Protocol, but that one is full. So, they need to open a new one. This one needs to be approved by the FDA. It should have been approved by February 8, 2010. They are lagging behind. The NYC doctors think it will be approved by the end of the week. So, technically Ally was supposed to start today with injections, but since the FDA has not approved the Protocol, Ally can't start injections today. Also, Ally can't start injections today because they have not yet arrived in the mail. What this means is that most likely Ally will start injections NEXT Wednesday and go to NYC the week of the 15th. Of course, this is speculation on my part. Good news, we get to keep Ally home another week, fatten her up some more and enjoy her super spunkyness that she has had since returning from NYC.

No comments: