Wednesday, March 17, 2010

Wednesday, March 17, 2010 10:53 AM, EDT

I just talked to Daddy. Ally has been in pain for about 45 minutes. He feels she is on the tail end of it. The whole process begins with pain meds and hive meds. Then the antibodies go it. About 10 minutes into the infusion (that lasts 30 minutes) the pain usually hits Ally. They then administer "rescues" of pain meds. Typically 1 rescue will knock a kid out (put them into a fitful sleep). Ally got 5 already today and she is still fully awake. They think she may have built up a tolerance for the pain meds, because she was so heavily medicated with morphine during her stem cell transplants. They are trying a patch that will dispense pain meds continuously over the next three days. Hopefully that will at least take the edge off. The first round is all about figuring out what is going to work best for Ally. Hopefully they will find the perfect combination by Friday, so that round 2 won't be as painful.

In case you didn't get the extra note last night here is what happened:
I was skyping with Daddy around 7:30. He said Ally flipped the switch around 5:00 and was back to her old self. They went out for pizza. When they got back to the RMH Ally asked if they were going to go to the hospital at all. She had not remembered ANY of the hospital trip. We are very thankful she does not remember the pain, but at the same time it is a bit disturbing that parts of her memory are completely gone.

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