Monday, March 15, 2010

Monday, March 15, 2010 3:18 PM, EDT

Today went slowly for Daddy and Ally. The infusion did not begin until 1:00. About 10 minutes into the infusion the pain began. The pain was concentrated in Ally's butt. (Weird) Her heart rate raced up to 180. After 20 minutes or so the pain subsided and Ally was able to drift off into a fitful sleep. Her heart rate is on the way down (160 @ 3:00) and she is groggy. (No hives (yet) and no big breathing issues.) The nurses and doctors were VERY IMPRESSED with how Ally handled the pain. They feel they will be able to safely up her pain meds tomorrow. (They have to be careful about the pain meds because they could relax her too much and she would stop breathing.) Their estimated time of departure from the hospital is 4-4:30.

Before the infusion (because they were told to be there for 8:00 this morning) Ally had lots of fun in the play room. They kids were doing an activity where they picked a musical instrument and they moved and danced all over the room (about the size of a small elementary gym). Ally picked the vacuum. Yup, the vacuum cleaner is now a musical instrument.

Tonight there is a sock hop at the RMH. The nurses said Ally would most likely be wiped out for the rest of the day, but hopefully she will be willing to head down to the sock hop for some food and at least watching the other kids dance.

Daddy feels it was a good day.
Mommy wishes she were there to give them both a big hug.

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