Sunday, January 31, 2010

Sunday, January 31, 2010 8:11 PM, EST

Ally's birthday was great!

Tomorrow Ally will get a blood draw. On Friday the doctors told us to be ready to bring her up for a blood transfusion at some point this week. Hopefully it will be later in the week or not at all. Also on Friday one of her oncologists remarked again at how wonderful she thought Ally was doing. She said that some of the other kiddos they see, that have had this surgery, start to look as good as Ally about 4 months out. I can't imagine her being like this for four months. She still will not walk on her own (she can, she just doesn't want to), she must have someone to sit with her and will only tolerate being alone (and by alone, I mean not physically touching her, she needs someone to sit on, not just in the same room) for about 2-5 minutes. She doesn't have much of an appetite and is still puking...which we found out is common for 4-6 weeks after surgery. Ugggghhhh. She is also not interested in her toys very much. She will play with some things for about 5-10 minutes, but then is content to just sit on the couch with someone, sometimes watching tv, sometimes reading books and sometimes just sitting there quietly. We miss old Ally.

On a brighter note Ally LOVES her big girl bed and she slept the whole night through in it last night!

Hopefully not much to report this week.

We head back to NYC the week of school vacation.

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