Wednesday, July 08, 2009

ALLY'S WEEK SO FAR...
(Prayers and good vibes are much appreciated as Ally has the scans this week; hoping for happy results in time for Ally's Daddy's birthday on Friday.)


Week of 7/6: Wild Animal Kingdom, Scans, possibly Story Land, and Daddy's Birthday

Week of 7/13: ??? (probably chemo)

From Ally's Mommy:
Tuesday, July 7, 2009 2:44 PM, EDT

We are back from our trip to Maine. Our original plan was to drive up there in the later afternoon on Monday, spend some time on the beach, eat dinner, relax in the hotel, and go to the zoo on Tuesday. We checked the weather and it said possible showers Tuesday morning, so we left early on Monday and went straight to the zoo; while it was still sunny. (Disclaimer: Ally takes meds that make it so she should not be in the sun, we stayed in the shade as much as possible!) Ally had loads of fun. She mostly loved all the different kinds of monkeys that were there. She really loved the baboon. Some of the other things that happened of note: we saw a goat actually being born, a deer ate from Ally's hand (she HATED that!) and we got to ride in the paddle boats. After the zoo we checked into the hotel, swam in the pool for about 15 minutes (it was too cold for Ally to tolerate) then head to York Beach. We got some dinner and then spent some time on the beach running away from the water. After the beach we headed to Goldenrod to get some taffy and then back to the hotel. Ally is not a fun bed-mate. Her little feet find your belly numerous times throughout the night.

We are very happy we changed our plan, because it was rainy and COLD this morning. We checked out the beach one last time and then headed off to the shopping outlets. Ally loves all the little cars and busses little kids can ride in at the outlets. The best part is that she doesn't even care if we put money in them! After the outlets we met up with Auntie Kelly. We (Ally) were minor celebrities. We met Police Officer Widerstrom (a friend from when I taught school elsewhere), Auntie Kelly's friends who have a cat Ally likes to look at pictures of, and another family from Dover who have fought and won the neuroblastoma war (they were very kind to get Ally a wagon a number of months ago...which she plays with every day). We are now at home awaiting friends to come for dinner.

Tomorrow we are headed to the NH medical center for port access (2:00) and an MIBG injection(3:30) (literally 10 minutes of procedure and we will be there for 2 hours...gotta love hospital scheduling). We do plan on having a tasty early dinner at one of our favorite pizza places up there. We then go back to the medical center for most of the day on Thursday. Depending on the weather and if we hear back about scans we are going to Story Land on Friday, or just relaxing with Ally at home (or maybe at Grammy and Grampa's pool).

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