TUESDAY, SEPTEMBER 30, 2008 05:28 PM, EDT
Ally had a good day. She is still VERY fussy about eating. We are not sure if this is just her adjusting to being home or if it is morphine withdrawal symptoms.
Note: Nurse Teri recently wrote to listener, saying:
Morphine may be hindering Ally's appetite in a big way.
See how much we need a National Nurse!
Tuesday, September 30, 2008
Monday, September 29, 2008
MONDAY, SEPTEMBER 29, 2008 05:41 PM, EDT
Ally made a short visit to the NH hospital today. They took some blood, changed the caps on her tubies and talked to Grammy a little bit. We found out there is no getting rid of that 4AM morphine (at least for a couple of days). Ally did not need any blood today, but some of her values were low, so they are going to take more on Wednesday when we have to bring her back for radiation simulation. Speaking of radiation, Ally's oncologist mentioned that she thought it would last for about 4 weeks. Ally will NOT be admitted for radiation. This means, 4 weeks of day trips, or finding a place to stay up there. We have not decided what to do yet. We need to keep in mind Ally is in quarantine, so she can't be exposed to dirty hotels or other people (like at David's House).
Ally is still having troubles sleeping at home, and getting her to eat (or at least us figuring out what she wants to eat) has not been fun. We will probably get it under control just when radiation begins...
Sunday, September 28, 2008
SUNDAY, SEPTEMBER 28, 2008 07:53 AM, EDT
Last night was better for sleeping. Ally stayed in her crib until 1:00AM. She went right out when I layed with her on the air mattress. She woke up just enough to take her 4AM morphine (which we are going to ask the NH hospital to change!) and then went back to sleep until her pump went off around 6 this morning. She napped a little until Daddy took her downstairs around 6:30 and Mommy slept for another hour.
Overall Ally is happy. She is not eating nearly as well as she did when she came home from the first transplant and I think she drank about 1.5 ounces of liquid yesterday. She can get easily upset, but almost just as easy we can calm her down. She LOVES to snuggle. There is very little time she in not on a lap or being held in some way.
Saturday, September 27, 2008
Encore!!
"We are such spendthrifts with our lives," Newman once told a reporter. "The trick of living is to slip on and off the planet with the least fuss you can muster. I'm not running for sainthood. I just happen to think that in life we need to be a little like the farmer, who puts back into the soil what he takes out."
SATURDAY, SEPTEMBER 27, 2008 11:56 AM, EDT
Here is a time table of Ally's Night:
6:00 - showing signs of being tired
6:30 - gets a 2nd wind
6:45 - bath for about 1.5 minutes
7:30 - really tired
7:45 - bed time (in her crib) with about 10 minutes of fussing
11:30 - Ally decides sleeping with Mommy and Daddy is WAY better than her stupid crib. This means Mommy and Daddy have to work together (in the dark) to unplug Ally's IV machine, wheel it into our room (around all the bags we still have to unpack) and find a place to plug it back in. Then Ally proceeds to take up as much space in our Queen sized bed as she can.
4:00AM - the alarm goes off for us to give her morphine. Ally takes this opportunity to tell us she wants to eat. (She has a cute word that sounds like nnnyum.) We manage to convince her to sleep for 30 more minutes.
4:30 AM - Daddy carries the heavy IV pole and machine down the stairs. Mommy makes Ally pancakes (microwave). Ally eats 2 bites then snuggles up with Mommy on the couch.
4:45AM - 7:00AM - Ally dozes, asks for pancakes about every 15 minutes or so, then dozes again. I think she did do one stretch of about 45 minutes of sleeping. Around 5:30ish her IV machine beeps that her fluids are done. We spend about 5 minutes, with the lights on flushing her lines and disconnecting her.
7:00AM - Ally is up for the day.
We are planning on putting the air mattress in her room tonight.
We even got to take her for a walk outside this morning!
Friday, September 26, 2008
FRIDAY, SEPTEMBER 26, 2008 03:11 PM, EDT
Ally's Mommy rejoices:
We are home!
We were on the road by 1:15. The rain did prolong our trip a bit, but it wasn't too bad. We were able to miss most of the north bound weekend traffic.
When we got home Ally promptly threw up on the kitchen floor. I was excited that she waited until we were out of the car!
We found out Grammy can bring her to the NH hospital without us! Yeah Super Grammy for being willing to do that!
Ally will be on morphine and IV fluids for a while. Her IV fluids will be run at night and will have potassium because her levels have been low the past few days.
She is busy exploring the house, Daddy is busy taking out the air conditioners so that we can turn the heat on in our 63 degree house. Silly 125 year old house!
Being home is great!!!!!!!
FRIDAY, SEPTEMBER 26, 2008 09:14 AM, EDT
ANC = 6110
We found out Ally has to go to DHMC on Monday. With 2 parents who have to go to work that day we are hoping they will let us send her there with Grammy.
Today we are waiting for platelets, a dressing change and a prescription for morphine. (It will take about a week to wean her off it.)
I'll post again when we get home.
[DHMC = the NH hospital]
Thursday, September 25, 2008
Wednesday, September 24, 2008
From my INBOX
Hi,
I'm against the $85 BILLION bailout of AIG.
Instead, I'm in favor of giving $85,000,000,000 to America in a 'We Deserve It' dividend.
To make the math simple, let's assume there are 200,000,000 bona fide U.S. citizens, aged 18+.
Our population is about 301 million counting every man, woman , and child.
So, 200,000,000 might be a fair stab at adults 18 and up.
Now, divide 200 million, 18+ adults into $85 billion - that equals $425,000.00 each!
Yes, my plan is to give that $425,000 to every adult as a 'We Deserve It' dividend.
Of course, it would NOT be tax free. So, let's assume a tax rate of 30%. Everyone would pay $127,500.00 in taxes.
That sends $25.5 billion right back to Uncle Sam! It also means that every adult 18+ has $297,500.00 in their pocket.
A husband and wife would have $595,000.00!
What would you do with $297,500.00 to $595,000.00?
· Pay off your mortgage – housing crisis solved
· Repay college loans – what a great boost to new grads
· Put away money for college – it'll really be there
· Save in a bank – create money to loan to entrepreneurs
· Buy a new car – create jobs
· Invest in the market – capital drives growth
· Pay for your parent's medical insurance – health care improves
· Enable Deadbeat Parents to come clean – or else
Remember this is for every adult U.S. citizen, 18 and older (including the folks who lost their jobs at Lehmann Brothers and every other company that is cutting back) and of course, for those serving in our Armed Forces.
If we're going to do an $85 billion bailout, let's bail out every adult U.S. citizen!!
As for AIG – liquidate it.
· Sell off its parts.
· Let American General go back to being American General.
· Sell off the real estate.
· Let the private sector bargain hunters cut it up and clean it up.
We deserve the money and AIG doesn't. Sure it's a crazy idea, but can you imagine the coast-to-coast block party?!
How do you spell Economic Boom? W-e D-e-s-e-r-v-e I-t d-i-v-i-d-e-n-d!
I trust my fellow adult Americans to know how to use the $85 Billion 'We Deserve It' dividend more than I do the geniuses at AIG or in Washington, D.C..
And remember, The plan only really costs $59.5 billion because $25.5 billion is returned instantly in taxes to Uncle Sam.
WEDNESDAY, SEPTEMBER 24, 2008 12:40 PM, EDT
Ally and Daddy had a wonderful night's rest last night.
ANC = 3,690
We found out Monty (our kitty) can come home, we are allowed to have a Christmas Tree and we will not have to go to Boston for a checkup between discharge this Friday and going to DHMC next Wednesday!!!!!!!!
Ally has shown a little interest in eating. She is able to be unhooked for a little bit each day, and they are weaning her off all the things she is hooked up to.
SHE IS COMING HOME ON FRIDAY!!!!!
Tuesday, September 23, 2008
TUESDAY, SEPTEMBER 23, 2008 08:23 AM, EDT
Ally had a bloody nose last night...poor Oscar took the brunt of it...bath time for him!
ANC = 2800
Yup, she is the bestest baby ever. The docs are saying Friday is discharge day!
Here is a photo of Ally taken in September 2007.
Mommy looks forward to making pigtails again!
Ally had a bloody nose last night...poor Oscar took the brunt of it...bath time for him!
ANC = 2800
Yup, she is the bestest baby ever. The docs are saying Friday is discharge day!
Here is a photo of Ally taken in September 2007.
Mommy looks forward to making pigtails again!
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