Monday, November 9, 2009 5:27 PM, EST


New York Story:

Friday - Our schedule was: 8:00 MIBG scan and bone marrow biopsy followed by a quick chat with the Doctor to go over results and make sure we were good with the new plan. We figured 11:00 at the latest (this hospital is on time!!!) giving us the rest of the day to explore NYC
What really happened: 8:00 MIBG scan and bone marrow biopsy.
10:00 Ally is returned to us VERY groggy. I ask the nurse if there is anything else for us. She didn't think so, but told us to check in with the desk. Daddy checks in and comes back with the news that they want more urine.
10:05: We are back in the procedure room getting a 4 hour urine bag place on Ally. This is a bag that is attached to her with a long tube attached that empties into another bag and will collect pee for 4 hours. They work really well for boys, and tend to leak on girls.
10:10 We are told we don't need to stick around, just be back around 2:00 to take it off. There goes our day......
We decide to go back to the Ronald McDonald House (RMH) because Ally is already saying she does not like this "funny diaper"
We carry her the 5 windy blocks back to the RMH and arrive there about 10:25
10:40: The phone rings and the doctor is ready to see us. We tell them we left the building and can be there in 15 minutes. We get ready to go.
10:43: They call us back and tell us the doctor can't wait that long, but they want us back on the floor so we are there when he is ready.
11:00: We arrive back at the hospital and let Ally play in the playroom. She has been crying to get the "funny diaper" off the entire time. She begrudgingly plays.
11:15 They call us to see the doctor. No surprise on the MIBG scan, no news on the bone marrow yet, chemo will probably begin this week...or whenever the NH medical center calls us (hopefully this week) and the surgery will be 4-5 weeks later (Christmas in NYC!)
11:30 We go back to RMH and lay Ally down for a nap.
12:30 Ally is awake, but just lies about on the bed, asking to take the funny diaper off. She is very proud of herself when she pees and can see it in the tube...2 year olds are fun!
1:45: Back to the hospital (carrying Ally again) to take off the funny diaper. Ally is HAPPY!

Later that evening...We are in the elevator at the RMH and a teenager and her mom join us. The girl has a few tubes of chemo running on her. Ally says "That girl funny diaper too!" for all to hear. Ahhhhhh.....gotta love her!

Fun Tid Bit: Ally yells "Hot Dog" when she goes down the slide!