Tanner update from yesterday (site was down for"improvements")

Posted 1 day ago

I made a post yesterday, but somehow it didn't show up, so I'll try again. Tanner has been growing and doing so well. He's been loving the summer and playing outside. We've even been to Lagoon (local amusement park) and he loved it. Although he does tend to overheat quickly, as he doesn't seem to sweat. weird. The last couple weeks Tanner has gotten sick twice and avoided the hospital even though he was really sick! What a milestone, to get sick and get better AT HOME! Last week he started with bad diarrhea and we had it tested, but everything came back negative, which was somewhat baffling. HOWEVER, his EBV, which has been undetected has taken a significant jump to 10,000. They are scheduling an upper/lower scope asap to check for PTLD (cancer), and also head/neck/chest/abdomen CT scans. They're also putting him on a strong antiviral and lowering his prograf (immunosuppression) in the hopes that his body can fight this. I'll let you know when we have those scheduled, Megan