from auntie listener. . . .
Just had to tell you that Ally is feeling good again!
And so are her Mom & Dad. :-D
Tuesday, February 28, 2012
Monday, February 27, 2012
Tsunami and the Genealogy of Morality
Listen.
Grass in the place now devoid of God.
Leaves of rustling grass voices of lesser deaths
millions strong leaves of grass.
The Old Order too, shaman, priest
summon sun, rain, son, reign
lesser deaths, sacrifice, wafer, grain.
Why insist on hearing noise as Voice?
wind chimes tinkle and the waves lap, lap, lap, lap
Lion's tongue waiting for the gazelle to thirst too.
More than voices the gods in our heads, visions too
infant mind, fertility goddess turned clay object toy
bountiful crop prayer to mother earth.
Men offered forbidden fruit leaving garden
Bellow of legions charging the front.
Voices in the head bicameral myths.
Ocean on land.
Discourse lost to the wind, the waves, to predator lurking.
Old wisdom lost with God.
Had we heard the leaves rustle, the lapping, would we turn
to plant the spear, to run when the ocean recedes?
By Phil Specht on Feb 27, 2012
Sunday, February 26, 2012
Sunday, February 26, 2012 12:08 PM, EST
So....I brought Ally to the doctor this morning...double ear infection; we took the antibiotics this time. While we were there a student nurse was working, the doctor asked if we would mind if the student really looked Ally over, as she is a very special patient. We did not mind at all...it was nice to provide a learning opportunity. Ally was a very good patient. She hates the antibiotics...just like I did when I was little.
Daddy is 100% better.
Today is the first day where I can really eat real food!
Thanks for thinking of us. I'll let you know about HAMA later in the week.
Friday, February 24, 2012
Friday, February 24, 2012 7:10 PM, EST
On Wednesday we drew Ally's last HAMA sample. We will find out next Wednesday what the results are. We are hoping to get one more 3f8 treatment in before Ally's protocol runs out.
Ally has been fighting an ear infection for a couple of weeks. She will have a few really good days, then slide back. Her hearing is being effected, and she is down to 26 and a half pounds. Grrrr.
On Tuesday I was diagnosed with a sinus infection, and then on Thursday I am pretty sure I had the norovirus...good news, I think the norovirus wiped out the sinus infection!
Right now daddy is sleeping off a fever.
Our biggest fear at the moment is that Ally will get one of these and then we will have to go to the hospital. I could afford to lose the 8 pounds of water weight on Thursday, but Ally can't.
I'll keep you updated about the current health situation, and about HAMA results. Please keep Ally in your prayers to keep these "everyday" sicknesses at bay.
Wednesday, February 22, 2012
Tuesday, February 21, 2012
Monday, February 20, 2012
shadow1096
Earth Physics and Valentines
in this space and time
molten rock turning inside out
once again
surface blue and white and brown
and green
turning, turning
alive
and circling above our twin
light of the night in the black space
while distant solids and liquids and gases
obey too this space and time
here alive, there in the cold void not
yet in the void that is now
futures are finished and the past is yet to be born
possibilities appear
anything is possible
anything
and you join me
heat for the cold void
life
light converted to heat
by your touch
Phil Specht on Feb 20, 2012Tuesday, February 14, 2012
Monday, February 13, 2012
Thursday, February 09, 2012
Monday, February 06, 2012
Sunday, February 05, 2012
Thursday, February 02, 2012
Wednesday, February 01, 2012
Monday, January 30, 2012
Made me cry. . . .
Monday, January 30, 2012 6:58 PM, EST
On February 19, 2009 Ally's prognosis changed. We had just come off 3 months of remission and were feeling good. Her scan that day showed the tumor was back. It was heartbreaking. The very next day we met with her oncologist and made a plan. The plan really did not include Ally having a 5th birthday...
I am so glad that plan was not the final outcome. We had the wonderful opportunity to seek treatment and surgery in NYC; with the blessing of our home hospital (which I am told is not common). We feel so lucky that we only need to travel to New York to get some of the best cancer treatment for Neuroblastoma in the world. Even though the road is a bit bumpy down there, Ally celebrated her 5th birthday today, so who cares about a few bumps in the road? She is worth every tear that has been shed, every long trip to a hospital, and every doctor's appointment she has required. She is such a good girl. She is (almost) always well behaved. She always does what the doctors say. She always has a smile on her face. She is the bravest person I know.
So, here is to Ally, who was determined to have a 5th birthday, no matter what that stupid tumor thought. And, here is to Ally having so many more birthdays.
She is the light of our lives and we feel so lucky to be her parents, we are so happy she picked us!
Happy Birthday Ally...and many more to come!!!
Sunday, January 29, 2012
Saturday, January 28, 2012
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