Saturday, April 30, 2011
Thursday, April 28, 2011
Posted by puddle at 4/28/2011 06:15:00 pm
Wednesday, April 27, 2011
Wednesday, April 27, 2011 5:21 PM, EDT
Ally had a blood draw today, to check her counts from last week's chemo. She did great! Her white blood cells were around 2.5 (normal person = 5 or 6), her ANC was about 850 (last week it was ~1100, so not a huge drop), and her red cells looked good, her platelets even went up!
We will draw for HAMA next Thursday! It would be a great birthday present for me if she was negative!
We are having a super fun week. Today we made some whoopie pies and delivered a few to Uncle Larry and were surprised to see Uncle Andy and Aunt Deb there! (I wonder if Uncle Larry shared the whoopie pies?) Then, we delivered some to our neighbors, and Daddy is bringing some to work tomorrow.
Since Ally's counts are good enough we are even going to go out and about tomorrow and Friday, then we spend the weekend with Daddy and next week I go back to work (but less than 2 months until Summer Vacation!!!)
Posted by puddle at 4/27/2011 10:30:00 pm
Monday, April 25, 2011
Sunday, April 24, 2011 8:35 AM, EDT
Ally has been great the past few days. She has had 3 REALLY good nights of sleep (which means Mommy and Daddy have had 3 really good nights of sleep as well), has not had any more puking episodes, and has been full of energy. The only effect of the chemo we are seeing right now is a very low appetite. (We assume her blood counts are low as well, but we have not had a blood draw yet to see how low they actually are.) Today is the first day we are not giving her her anti-nausea medicine, and we are hoping she won't need it.
NOTE! Today (the 25th) is Ally’s parents’ 7th wedding anniversary!!!!!!!
Posted by puddle at 4/25/2011 10:56:00 pm
Sunday, April 24, 2011
The Sun on Easter
It's still gray, not yet light.
The clouds rest like islands
on the mountain side, snow filling
the spaces between the trees,
a maze of paths my eyes
climb and walk. It's Easter
Sunday though you couldn't
tell that from my window as I
watch the sky and mountain
before this morning's dawn.
It's quiet as I wait expecting
light as it comes so reliably
every day of our lives.
But, what if it didn't today?
What if we would only know
this grayness, this waiting?
There is a somberness in
the time before light, an
acknowledgment of need
for light in this our one life.
By Pat Maslowski on Apr 24, 2011
Posted by puddle at 4/24/2011 12:58:00 pm
From the icy grip
the earth awakes, not from primal instinct
there is no evolution says the Church, while everywhere woodland flowers
proclaim resurrection in a yeah so attitude
whatever, party on. No.
as if this annual miracle was less.
Is it in the northland that death's door locks shut
til the tilt again favors the sun, the son, The Son.
worthy of celebration even had Christ had not issued
the invitation to arise, we, too, with the Creation.
By Phil Specht on Apr 24, 2011
Posted by puddle at 4/24/2011 12:33:00 pm
Saturday, April 23, 2011
Snow has faded
Fields are green and greener
Gold coins of Lion's Teeth scattered
along road edges and ribs
Small bunnies fill coyote tummies
Bright blaze of Cardinal
And the apples, ancient by any reckoning
agree to bloom, again
And the Chokecherry!!
If there's more to be asked
I don't know what it would be
23 Aprille 2011
Posted by puddle at 4/23/2011 11:35:00 pm
Thursday, April 21, 2011
Thursday, April 21, 2011 12:53 PM, EDT
At 2:30AM Ally called me in because she had puked....everywhere. She called me in again at 3:00, this time, before she puked, so we were able to catch it in a bucket. We gave her some medicine, and she has been good since. Grammy e-mailed me a while ago and said Ally is full of energy and has eaten some food.
Puke, especially at 2:30 AM is gross.
Posted by puddle at 4/21/2011 09:34:00 pm
Wednesday, April 20, 2011
Wednesday, April 20, 2011 6:43 PM, EDT
Today went well. Ally and Daddy were in and out in record time. They got there for 8:00 this morning, and were on the road by 2:00 (this is a really good time for the kind of chemo Ally got today).
Ally will have a blood draw next week to check her counts. We know they will be low, but we are hoping she will recover quickly. Low counts will mean that we need to stay away from crowded places and sick people, hopefully we will still have lots of fun during vacation next week. Ally really misses school, and we are hoping that her counts will be good enough to go back to school the first week of May.
Tonight the chemo does not seem to be affecting her at all. She did not nap today, she is FULL of energy and hasn't stopped talking since I got home from work (Daddy said she has been like this all day). The only thing we see is a lack of appetite, but it could be her just taking advantage of us not forcing food on her like we normally do.....someday I'll post about Ally's sticker charts.
Posted by puddle at 4/20/2011 09:45:00 pm
Tuesday, April 19, 2011
Tuesday, April 19, 2011 5:22 PM, EDT
Today Ally did her 2nd dose of Rituximab. As you may recall, she did this 2 weeks ago, puked as soon as it hit her veins, puked again with an adult sized dose of another med that is meant to keep her from puking from the first med....it was a mess. Anyway, today went much better. There was no puke, no headache and we were out of there in 4 hours.
Tomorrow Ally gets low dose chemo. The only side effects from this should be: puking (for a couple of days), low energy and low blood counts. Basically we will need to keep her out of public and school for a couple of weeks until her counts recover.
Wish Ally and Daddy luck tomorrow!
Posted by puddle at 4/19/2011 09:58:00 pm
Monday, April 18, 2011
Sunday, April 17, 2011
They say that everything swirls
constantly interacting, changing
but all I see is what I know:
My book, the living room sofa,
the rug, the window looking out
onto the meadow and Storm Mountain.
They call it Monkey Mind,
thoughts, feelings, wants,
memories rushing in whirlpools.
My mind's a planet and I
can't find the sun. It hides
behind the miasma of mortality.
And so you ask, ten years
from now, what will my life
be like? I'll see more deeply,
know that everything I think
and feel goes out into the universe
and all that we are made of lives.
Catastrophe, chaos, crisis
brings change, the newspaper said
and we will be changed, remade.
Transparent to ourselves so that
everything we think, say, or do
reverberates like music, like love.
By Pat in Colorado on Apr 17, 2011
Posted by puddle at 4/17/2011 03:00:00 pm
Saturday, April 16, 2011
Sizzle, Sap, and Sulfur
A food preservative, a passing devil
when the walnut lost the limb
me, rounding up cows in the thunderstorm,
on the road to Damascus.
You think lightning strikes down?
not always, aimed between my eyes it curved over ridge
level with the ground, not yet hearing thunder
til the boiling sap sizzle sound, smelling salts sulfur
clearing ringing ears my eyes saw first
smell a mix of syrup and hell
what sense to believe?
One hand clapping, a clap of thunder
the tree now a limb lost amputee
sharing the revelation of the cosmos
all is one.
By Phil Specht on Apr 16, 2011
Posted by puddle at 4/16/2011 11:24:00 pm
The Science of Lightning
. . . . . . . . . . . . . . . . . . . for Sarge
Flashing bright all around
and then the wait.
1 . 2 . . 3 . . . 4 . . . . 5 . . . . .
Growing, green things were my science
The in and out of it
What's hidden in the seed
Roots breaking rocks
What I needed to know of my world
Meaning prised out of method
Bellydown in summer dust, breathing things
were my knowing, wishing, longing
Hornbook and chalkboard and sampler
Shiny black ants moving boulders,
Yellow striped things savoring gold dust
Morning's silver trails
Webs swept with dew
Fat green caterpillars with racing stripes
Downy wing and feathered
gathered and hoarded
Stones that glittered, sparkled, glowed
jagged or rubbed round
Abacus dream, counting coup
from light to sound, count to five
Numbers, now, numbers are
16 Aprille 2011
Posted by puddle at 4/16/2011 05:54:00 pm
Wednesday, April 13, 2011
Tuesday, April 12, 2011
Monday, April 11, 2011
Ally's first ponytail!!
Sunday, April 10, 2011 2:21 PM, EDT
We are having a great time with this warm weather. The playhouse has been Spring Cleaned!!!
PS: We are allowed to say "awesome" now. The new banned word is "radical".
Posted by puddle at 4/11/2011 09:33:00 am
Thursday, April 07, 2011
Thursday, April 7, 2011 9:17 AM, EDT
What should have been a 3 or 3 1/2 hour day turned into a 7 hour day for Daddy and Ally yesterday. First, DHMC got a new computer system at the beginning of the month, so Ally and Daddy waited close to 30 minutes to check in (it usually takes 5-10 minutes). When they finally got back there things started a little late, but she was happy in the playroom. Ally gets premeds for the Rituximab, because it can cause severe reactions. The first time she got the Rituximab she did not have any reactions. This time she did. Very soon after the medicine started going in she threw up. They had to stop the Rituximab, re-order all her premeds and administer them again. One of the premeds, when given in higher doses, can cause severe headaches. A little after the premeds went in, Ally snapped up from her nap, grabbed her head, threw up and then screamed from the pain. Poor girl. Daddy said it was similar to the screams she does in NYC. Luckily it only lasted 5-10 minutes and she was able to fall back asleep. They ended up leaving the hospital around 4:30. When we have to go back in 2 weeks the plan will be to give her some premeds at home, the day before, and even more at the hospital. This should prevent another reaction.
On a positive note Ally was perfectly fine by the time she got home last night, and is very excited to go to school today...they are learning about the letter O this week, just like as in Octopus, which she told her teacher on Monday.
Fun fact: Ally says the word "machine" like this: Sha-mean. It is VERY cute, especially when she is talking about grampa's ski sha-mean.
Posted by puddle at 4/07/2011 10:03:00 am
Wednesday, April 06, 2011
now that the river has left its banks
it slows out into the cropland
not in the wild rush after summer storm
but a thousand creeping trickles from the very last snowbank
it may have peaked you think
but the crew still puts up 'Road closed"
the carp gather to cross, and the baby eagles
learn the taste of fish, spring, and river rise
By Phil Specht on Apr 6, 2011
Posted by puddle at 4/06/2011 04:04:00 pm
Tuesday, April 5, 2011 9:08 PM, EDT
Change of plan....as so often happens with our little Ally (who is getting bigger, at 27 pounds).
Ally will head up to DHMC for Rituximab tomorrow, but the chemo will wait until after her second dose of Rituximab in two weeks.
Her runny nose has not been any worse, and today she was actually better, although she was coughing a lot after we put her to bed tonight....hope that doesn't turn into anything.
Posted by puddle at 4/06/2011 03:31:00 pm
Tuesday, April 05, 2011
Monday, April 04, 2011
Evolution of Language and Politics
Molecular reactions aware of themselves
evolution no longer chemistry
chyral turns, new spellings
The capture of replication
by membrane knew nothing
of origin of the species
even though first
left handed or right
"two sides to everything" it's said.
Why we divide before we unite
I suppose. Your truth
By Phil Specht on Apr 4, 2011
Posted by puddle at 4/04/2011 10:58:00 am
Saturday, April 02, 2011
Saturday, April 2, 2011 3:37 PM, EDT
We just got a call from our oncologist at the local medical center. Ally’s bone marrows are clear as well!
Our plan is to head up there on Wednesday for Rituximab and Thursday for Cytoxin (chemo). The only hitch is that Ally has the start of a runny nose.
If it gets any worse, the ritux and chemo will be pushed off till the following week. Please pray it is just a runny nose and goes away quickly.
Enjoy the rest of your weekend!!!
Posted by puddle at 4/02/2011 07:47:00 pm